"I learned to see life in a different way."
Family & Friends
When one family member has MS, everyone in the family is affected. Open and honest communication with loved ones is valuable and important. MS can bring to mind scary images. You need to combat your loved ones' fears with information. In the long run, communication builds trust.
How to talk with family and friends?
Learn innovative communication skills to help those who help you - MS Communication Skills 101
MS Communication Skills 101
Gain a well-rounded perspective on ways to communicate with family and friends when you are newly diagnosed with relapsing MS.
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The unpredictability of MS can cause an outburst of feelings. Two of the most common feelings are anger and guilt (for feeling angry). So many changes are taking place—new responsibilities, changes in roles, and a possible loss of income. With these changes can come emotional reactions. These feelings are natural and normal. Try to talk frankly at calm moments. This can help every member of the family understand the strain each person feels.
It may be difficult, but you and your loved ones need to find time for your own activities. Socializing is a key source of well-being. Do not push your friends away because you think they don't understand. Give them the chance to be there for you. Try to spend time with others and enjoy hobbies. This can help restore a feeling of normalcy.
You and your partner
The strain MS places on relationships should not be taken lightly. Some people become so focused on their MS that they pay less attention to their partner. They may even lash out. It's important to try to be aware of how you are behaving toward your partner. Be aware that the initial shock you feel right after diagnosis is temporary and it will lessen over time. It should pass as you adjust to your MS.
"Try to find out as much as possible about MS. Then you can cope better and provide better support."
—MS LifeLines "Friends and Family" Ambassador Francis, husband of Bernie, who was diagnosed with relapsing MS in 2002
MS can make partners sometimes feel sad and helpless. Some feel that they could have made a difference "if only..." Others try to help too much but may do so in the wrong ways. Provide your loved ones with as much information as you can about the disease. This way they will know how they can help.
"We talk about Jacob's MS all the time. If we didn't talk about it, then one of us might stress out and it could cause tension. So we try to keep it on the surface."
—Jenn, wife of MS LifeLines Ambassador Jacob, who was diagnosed with relapsing MS in 2002
The physical and emotional health of the caregiver should never be ignored. Whether you have MS or are living with someone who has MS, if you are feeling angry or sad, do not be afraid to involve an outside source for help. There are counselors and therapists you and your partner can talk with to help you get through the rough patches.
