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"I learned to see life in a different way."

Tim's Journal

Staying Strong For My Son

June 26, 2008

The things we emphasized when we told my son, who was nine at the time, about my relapsing MS diagnosis were the things that he needed to hear, that everything was OK. First and foremost, I wasn't going to die. Secondly, even though there'd probably be bumps in the road like when I couldn't walk during my first big attack, I'd be pretty much plain old, dependable Dad at least until he was in college. I wish I could have convinced myself as easily that everything was fine , but that's another story. ...read more

How Accepting a Little Change Might Do You Good

June 12, 2008

People are often surprised to hear that I have relapsing MS because I am a pretty active person. Sometimes I even surprise myself with what my body is capable of. When I was diagnosed I thought that I would have to give up many of the things I enjoy. Now I know that what I have to give up are my ideas about how things are supposed to be done. Being open to change, accepting my limitations, and trying new things has enabled me to do far more now than I ever did before MS entered the scene. ...read more

It Takes a Village

May 29, 2008

The first time that I actually met and talked with anyone else with MS was almost 18 months after I was diagnosed. I went to San Antonio to be inducted into the MS LifeLines family as an Ambassador. Up until that time I had not dared go to a single support group, walk, or other MS-related event because I was afraid of what I would encounter and how it would make me feel. ...read more

Goals, Relapsing MS, and Me

May 15, 2008

Before I had my first MS attack, I was very ambitious, driven, and goal-oriented; classic overachiever traits. Unfortunately, I'm sure that if you asked my wife, she would tell you that I wasn't really overachieving enough to make the other adjectives that went along with those traits (like insufferable and overly meticulous) worthwhile. I guess the problem was not the fact that I was setting goals for myself, but that I was setting the wrong ones. ...read more

Carpe Diem!

May 1, 2008

Learning that the Latin phrase "carpe diem" means "seize the day" didn't make me classically educated, especially since I learned it from a movie, not in school. However, understanding and embracing the philosophy that it represents has perhaps made me a little wiser and ultimately better equipped to live with relapsing MS. ...read more

Being There For Each Other

April 17, 2008

I am very fortunate that I have been married to a great, strong, smart, funny woman for 15 years. Being married that long is quite an accomplishment these days, particularly given that we were so young when we got married (I was 26, she was only 20). Unbeknownst to us at the time, even the members of our wedding party started a pool on how long we'd last and nobody bet over three years! ...read more

What I Want For My Son

April 4, 2008

I'm going to start this entry by suggesting that if I were to ask a large number of parents with and without MS what their hopes and dreams for their kids, were that the results would largely be the same. They would pretty much all hope that their children would live long, healthy and happy lives. They'd probably all wish that their children all found great, rewarding careers and, in due time, love. I'd also be very surprised if any would not hope for a fine gaggle of grandkids to spring forth from their well educated, rich, successful, blissfully happily married children. ...read more

Finding Comedy in Everyday Living

March 20, 2008

Let me start by stating for the record that I'm an Englishman. We English tend to have a pretty fatalistic view of life. We are much less likely to have the optimism and drive to improve things. An English man or woman is much more likely to say "oh well — that's just the way it is, better get used to it" rather than "that sucks — how can we fix it?" ...read more

My Best Day Yet!

March 6, 2008

The worst days I've ever had were those immediately after diagnosis of relapsing MS, as I grieved for what I saw as the loss of my good health. Over several months, that grief grew into an obsession with MS that my wife described as an unwelcome "elephant in the room". During that time I wouldn't have been capable of having a good day if I'd won the Powerball jackpot! ...read more

Managing Relapsing MS - What Has Worked For Me So Far

February 21, 2008

One of the best things about being an MS Lifelines Ambassador is that I not only get to hear a lot of top-flight experts speak on the subject, but that I also get to meet a lot of people just like me - those living every day with relapsing MS. It's an incredibly supportive community in which fellow MSers swap tips and root for one another. ...read more

Friends

February 7, 2008

You've gotta have friends, or so the song says. Like many things people often say, it's true. For sure, it certainly helps to have all the people you can in your corner when you're dealing with this disease. ...read more

Brought to you by EMD Serono, Inc. and Pfizer Inc., the co-marketers of Rebif® (interferon beta-1a) in the US EMD SeronoPfizer

Prescribing Information - Medication Guide

This information is intended only for residents of the United States.

Rebif is used to treat relapsing forms of MS to decrease the frequency of relapses and delay the occurrence of some of the physical disability that is common in people with MS. Efficacy has been established in controlled studies up to 2 years in duration. Rebif is not approved for the treatment of chronic progressive multiple sclerosis. Rebif is available by prescription only in 22 mcg and 44 mcg pre-filled syringes and a titration pack.

Before beginning treatment, patients should discuss with their doctor the potential benefits and risks associated with Rebif. Let your doctor know if you have a history of depression, seizures, liver disease, thyroid problems, and blood count or bleeding problems or if you have had previous allergic reactions to medications. Tell your doctor about all medicines you take, including prescription and non-prescription medicines, vitamins and herbal supplements. Rebif and other medicines may affect each other causing serious side effects. Talk to your doctor before you take any new medicines. Rebif is not recommended for women who are or plan to become pregnant.

Potential serious side effects of Rebif include depression, liver problems, risk to pregnancy, injection site problems and severe allergic reactions. Allergic reactions are rare and may be associated with difficulty breathing and loss of consciousness, which requires immediate medical attention.

The most common side effects with Rebif are injection site reactions, flu-like symptoms (fever, chills, muscle aches, tiredness), depression, abdominal pain, increased liver enzymes, and blood cell count decreases. Let your doctor know immediately if you have any of these symptoms or feel sad, tired, hot or cold, experience hives, rashes, bruising, yellowing of the skin, or a change in body weight (gain or loss).

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

This information is not intended to replace discussions with your healthcare provider. For additional information about Rebif, please consult the Medication Guide or Prescribing Information and talk to your doctor. You can also call toll free 1-877-44-REBIF (1-877-447-3243). Rebif is available by prescription only.

MS LifeLines is an educational support service for people living with MS and their families. MS LifeLines and MS LifeLines Ambassadors are sponsored by EMD Serono, Inc. and Pfizer Inc.

Rebif, Rebiject II and MS LifeLines are registered trademarks and the Rebif logo is a trademark of EMD Serono, Inc. or its affiliates.

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