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Whether you are newly diagnosed with relapsing multiple sclerosis or have been living with MS for some time, the MS LifeLines team is here for you.

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My Conversation Starter Treatment Guide

My Conversation Starter

Finding a treatment path that's right for **[you]**

If you have recently been diagnosed with relapsing multiple sclerosis (MS), you may feel overwhelmed by the choices facing you. There are many effective treatments available today that help people living with MS. Disease-modifying drugs (DMDs) are the only medications proven to change the course of relapsing MS. In fact, the National MS Society recommends considering treatment as soon as possible following a diagnosis of MS with active, relapsing disease.¹

My Conversation Starter

You and your doctor have important decisions to make together

If you are considering a DMD, you have options. Because your needs are different from the needs of other people living with MS, this questionnaire has been designed to help you and your health care provider determine your next step, including a discussion of treatment options. You may answer only the questions that are relevant to you and your experience. After you’ve completed it, print it out to take with you to your next appointment with your health care provider. You may also email it to your health care provider so he or she has it in advance.

1. National Clinical Advisory Board of the National Multiple Sclerosis Society. Expert Opinion Paper: Disease Management Consensus Statement. National Multiple Sclerosis Society. 2008. http://www.nationalmssociety.org/for-professionals/healthcare-professionals/publications/expert-opinion-papers/index.aspx. Accessed May 2, 2012.

My Conversation Starter Treatment Guide

Name

MS History

How long ago were you diagnosed with relapsing MS?

0 to 6 months
6 to 12 months
1 to 2 years
More than 2 years

Are you taking MS medication right now?

I am not currently taking medication
I am taking medication(s) for MS

What are your treatment goals and personal preferences?

	Very	Somewhat	Not very
How important is it to not have to take medication during the weekend?
How important is it to be able to travel with your medication?
How challenging is it for you to refrigerate medication?

What are your treatment goals and personal preferences?

	Very	Somewhat	Not very
How willing are you to self-inject your medication one or more times per week?
How important is it for your medication to come in an auto-injector or syringe with clear instructions?

What are your treatment goals and personal preferences?

	Very	Somewhat	Not very
How satisfied are you with your current treatment?
To what degree have your symptoms worsened since you were diagnosed with relapsing MS?

What are your treatment goals and personal preferences?

	Very	Somewhat	Not very
How concerned are you about an increase in disability if your disease progresses?
In thinking about your MS, how important is reducing the chance of relapse?
How concerned are you with reducing the development of new brain lesions as seen on MRI?*
How worried are you about experiencing potential side effects from your medication?

*The exact correlation between MRI findings and the current or future clinical status of patients, including disability progression, is unknown.

What are your treatment goals and personal preferences?

	Very	Somewhat	Not very
How important is it that the medication has a reimbursement program for eligible patients?
How interested would you be in a support program that provided you with personal nurse assistance?
How interested would you be in attending live educational programs and getting educational material that will help to encourage you when you take your medication?

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